My story
In 2015 I got my first taste of chronic illness after returning from living in South Asia. Had I have found nervous system and somatic work at that point while symptoms were mild, I think my story would be very different. Instead endless doctors, functional medicine protocols ensued and I continued to decline. In 2019 a virus accelerated my decline and took me within a year from being able to function out in the world at a push, to neuromuscular disability and a host of other symptoms.
I would go on to develop autoimmune diseases and fibromyalgia. But far more challenging were the neurological symptoms which made speaking, noise and light come with a backlash of cognitive pain, and muscular collapse.
I lived for a few years in a place of Severe ME, Fibromyalgia mostly bed bound and later house bound.
There aren’t adequate words to describe living with such chaos in your central nervous system, along side a diagnosis of “nothing we can do” from the medical field.
It turns out in fact there is plenty that can be done.
Ultimately empowering oneself medically by taking your own health into your hands. I have learnt so much about the meaning of our lives, as physical beings, and spiritual energetic beings too.
I feel strongly that if I can get the correct information to people going through these conditions, and prevent anyone deteriorating to the level I did, then my experiences will be well used. And in fact for many I think once they understand the role of the symptoms and limbic brain progress can be made quickly and trust in ones body can be built.
It has taken me years of learning and implementing tools to recover to where I am now. I do not claim to be a health guru and I have no medical qualifications, but for the conditions I work with, for which there is a current medical black hole in knowledge and support. I believe getting advice from people who have first hand experience in recovery as invaluable.